MS Mom

So Aidan is really getting the hang of his balance bike now! So amazing to watch what a few months of physical development can do.

Another day. Ugg- Almost a month away from CCSVI treatment! I was really trying not to get my hopes up but that's been tossed out the window as these symptoms drag on! I'm so tired of walking up feeling unable to face the day and wondering how Aidan is going to manage another day with a barely functioning mom! Poor kid- I'm also torn because it's not that I don't want to spend time with him it's just that keep up with all the other day to day things (this really means putting dishes in the dishwasher and tidying up after him) are super tough- and recently he hasn't been napping. Super tough to deal with when I need a nap! Anyways I'm at work today- so I'm trying to think of this like a day off (sorry boss) but every time I do that it's crazy busy lol. Fundraiser is on my mind- but at least I've really only been asked to contribute what I already have collected and sell some tickets. (I was really hoping to do more but this relapse is teachi...

Ack! Ever have one of those moments where your fingers respond faster than your brain? That was me tonight I deleted a whole bunch of amazing pics of Aidan and 2 videos as well! Sigh I was so looking forward to blogging about them. I can still describe the but it's not the same without the pics and video :( Today we made our own playdough- best recipe to date. I think this will be my go-to recipe until I find a new one to try. Ingredients: 1Cup Flour 1 Cup Water 1/4 Cups Salt 2 tsp Cream of tartar 1Tbsp Vegetable oil 1 package of Kool aid or food colouring- we added sparkles last time and that was a fun addition!  Mix everything together in a big pot (I recommend a wooden spoon as it seemed to work much better than the plastic one). Once it is smooth (or close to it) put burner on medium and stir. Keep stirring until your dough forms a nice ball. This part seems to very for me every time but if I under cook it and it's still sticky I just add flour when I knead the d...

I have so many pictures and thoughts that I've been wanting to up load but all my spare time is being dedicated to trying to get CCSVI treatment and finding for the treatment that's really where my energy has been recently. I also have had a major relapse thought I think it may finally be easing up a bit Thank GOD!! It was such an awful reminder of what MS really looks like- I was not a huge fan and I will admit there were some days I really wasn't sure what I was going to do with poor Aidan. He was watching more TV then I care to share about and it was breaking my heart not being able to take him outside.I couldn't walk as the last time I went for a walk I got stranded (even with the stroller for support) and I really wasn't alert enough to drive. Aidan was a very good sport with me not being as involved in play or being as hands on but there was most assuredly a lot of fall out. I'm putting a lot of hope on this treatment working otherwise I think we are goi...