MS Mom

2 days post surgery and I'm starting to feel better. I'm home and that feels excellent. Sadly, even though I cleaned what I could before I left, the house was no where near clean enough for me when I got back. Ugh so I started cleaning immediately (yeah that's the kind of person I am sorry lol). But the good news is that cleaning didn't burn me out the way it did before I left!! yahoo!! Yep I just said yahoo about cleaning- deal with it lol. I didn't do nearly our whole apartment or anything even close (I'm aware I'm still recovering from surgery lol) but I did get my kitchen look good and almost as detailed a clean as I would like. I just need to pull out my steamer to really get the little stuff but it's going to be a process for sure. One room a day should get me to where I want to be soon enough. As you can likely tell I'm also in significantly better spirits than I have been in recent weeks! So nice to feel more like myself for a change. It...

It's done! Surgery went well. Vascular access center staff was amazing!!! Dr. McGuckin is kind and charismatic. I couldn't have asked for a better experience. Worst part? No bring able to eat! Lol I am not a person who deals well with low blood sugar. I went in for 8am filled out the paper work got into a gown, had an IV started and waited a few minutes to meet the doctor. We met Dr. McGuckin and went over the risks, expectations, post procedure recommendations. and a little friendly banter. I waited a little while (it didn't seem long at all) and then they took me in to get prepped after to prep work was done we the nurses and I chatted and soon Dr. M came in and he got to work. I don't remember the whole thing but I do remember the first 2 veins being opened clearly and the third vaguely. The first area (the left iliac vein) ballooned felt like a bad menstral cramp so a totally manageable amount of pain. The azygos was the barely noticeable ( I'd had more drugs...

Yep you heard me. I'm back and fighting. I'm in Seattle and ready for bed but first an update. I'm going in first thing in the morning for surgery. No calls with delays or anything so I'm hoping that means the green light is lit. I check in a 8am. I'm feeling nervous but lucky. We made it here with relative ease (though the nexus lane was looking mighty enticing while we waited 45min). I found a really sweet little Buddah charm that reminds me of my dad (who died a longish time ago) which left me with some warm fuzzy feelings. I spent a few hours hanging out with my mom at the mall and that was awesome! She is a super rad lady and I'm a lucky daughter. Now to snuggle with the man of my dreams. It's all good! Tomorrow will bring whatever it brings and I will deal with it one moment at a time. Deep breaths. Goodnight interweb I'll update you when I'm back from surgery. Xoxo M

I was hoping to have better news but I'm feeling really rough. Ugh not my best day. Struggling to keep upright and awake. My brain feels good but everything else isn't working as I'm used to. The steroids are done so I was hoping that my need to sleep would have been reduced. It may just be a bit of build up burn out but it feels pretty MSy yep sounds messy. So many wonderful thanks yous to send out to WAMS and people who attended, donated and everything else.i feel so loved and supported. It sounds like WAMS collected enough for my treatment and accommodations. Hoping there is plenty to help some of the other ladies in need. I'm not sure what else I have to share besides my huge feelings of gratitude for my amazing friends and family. I'm truly blessed and appreciate all the support I've received. Next up getting my chores done and getting prepared for surgery Thursday. I'm seriously hoping that this lack of energy will fade and make the drive that much ...

I haven't written in a few days because I really feel like I should have something new or interesting or at least something different to post about but I really don't. I'm so blessed to have so many wonderful friends and family members. My friends and my mom have been taking Aidan out which has allowed me time to look after myself. I have been seeing a massage therapist who has helped me get my pain under control a bit more - Such a huge relief! I've also taken a few more naps which seems to help keep me going all day without as much pain also. It's funny though because I do feel like I'm missing out I mean don't get me wrong I like alone time as much as the next person (dare I say even more than some) ut it does feel strange to be without Aidan as he and I are always together. I miss family days on weekends and taking Aidan to the park. Maybe once it warms a bit I'll be able to go to the park even if this relapse lasts. Currently the cold weather caus...

Wonderful news! Finally. First  I saw a massage therapist on Tuesday and again today and it really helped reduce my muscle spasms and pain! It never fails to help but it also amazes me every time it happens. I'm hoping this will last the weekend as it will surely get expensive fast if I have to go every 2 days lol Secondly I saw a chiropractor and I'm amazed by how much better I'm doing! he only did some very gentle manipulations as he said he prefers to take it slowly with neuro patients but it still had a huge impact! My face relaxed slightly (It looked better right away but I checked just now and it's almost back to were it was the other day. I'm hoping this is just because I'm tired. And my gait was immediately better! I can walk and I even have more sensation in my legs! I would highly recommend looking into this for anyone with MS as it as a dramatic impact and I was actually fairly reserved about how effective I thought it might be. I went in hoping it ...

Okay so this relapse has really been crapping my parenting style but I managed to squeeze in some good clean fun by getting Aidan into the tub for shaving cream and water colour play! Then some water play to clean up. Worked like a charm! Got an hour and a half of tv free time and a sleepy kid which to me is time well spent. It also didn't tire me out to bad as Aidan was contained and I just sat there and gave him some play by play on his actions.

Another day. Ugg- Almost a month away from CCSVI treatment! I was really trying not to get my hopes up but that's been tossed out the window as these symptoms drag on! I'm so tired of walking up feeling unable to face the day and wondering how Aidan is going to manage another day with a barely functioning mom! Poor kid- I'm also torn because it's not that I don't want to spend time with him it's just that keep up with all the other day to day things (this really means putting dishes in the dishwasher and tidying up after him) are super tough- and recently he hasn't been napping. Super tough to deal with when I need a nap! Anyways I'm at work today- so I'm trying to think of this like a day off (sorry boss) but every time I do that it's crazy busy lol. Fundraiser is on my mind- but at least I've really only been asked to contribute what I already have collected and sell some tickets. (I was really hoping to do more but this relapse is teachi...

Okay so yesterday would have been my little brother's 28th birthday. He died a little over 3 years ago in a car accident. He was a really sweet man who had overcome a lot of adversity. I miss him and think of him often. I wonder about how to explain about him with Aidan. Today I cried for him and worried Aidan would be concerned but he just kept playing with me- just a little more gently than before- it felt like a very compassionate response to my grief. Anyways yesterday I hung out with my mom- without Aidan this is a fairly rare occurrence. And we got cracking on a project that I bought materials for 2 years ago- gulp. Anyways still love it and can't wait to get it finished and onto my couch!!!!    So we got to work sewing. Well I mostly talked while my mom sewed but she was okay with it lol. It felt so nice to have a creative outlet on a day where I really wasn't feeling too hot. I finally got my sewing machine parts in the mail so I hope to t...