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Showing posts with the label struggles

Heuros and Neuros

Okay firstly I can't help but think Wow I'm really getting into this blogging thing! Who knew? I'm really enjoying sharing what's going on with me and getting it out there. I do hope one day to connect with more MS moms and share some stories and coping ideas. I hate to think about how many people are choosing not to have children because of their MS and it really saddens me as children are so amazing and MS is really crappy and having to choose MS over kids must be extremely hard!! I'm so grateful I dove in being nieve and not really caring about how I would deal during a relapse. I just assumed I would manage but never envisioned it being this hard! Today! Again I'm bless an old friend sep up after reading last nights blog post and offered to look after Aidan while I went to the doctor! It was so helpful especially because today was a crappy day. My balance is way out of wack!!! Sigh. I almost fell over countless time so again so glad Jaimie was able to help...

Neuros, CCSVI, and me

I haven't written in a few days because I really feel like I should have something new or interesting or at least something different to post about but I really don't. I'm so blessed to have so many wonderful friends and family members. My friends and my mom have been taking Aidan out which has allowed me time to look after myself. I have been seeing a massage therapist who has helped me get my pain under control a bit more - Such a huge relief! I've also taken a few more naps which seems to help keep me going all day without as much pain also. It's funny though because I do feel like I'm missing out I mean don't get me wrong I like alone time as much as the next person (dare I say even more than some) ut it does feel strange to be without Aidan as he and I are always together. I miss family days on weekends and taking Aidan to the park. Maybe once it warms a bit I'll be able to go to the park even if this relapse lasts. Currently the cold weather caus...

My face on this MS relapse

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So my dear friend took Aidan out this am so I put some makeup on and thought I'd document my new err "look" so here it is. M

Another Day

Another day. Ugg- Almost a month away from CCSVI treatment! I was really trying not to get my hopes up but that's been tossed out the window as these symptoms drag on! I'm so tired of walking up feeling unable to face the day and wondering how Aidan is going to manage another day with a barely functioning mom! Poor kid- I'm also torn because it's not that I don't want to spend time with him it's just that keep up with all the other day to day things (this really means putting dishes in the dishwasher and tidying up after him) are super tough- and recently he hasn't been napping. Super tough to deal with when I need a nap! Anyways I'm at work today- so I'm trying to think of this like a day off (sorry boss) but every time I do that it's crazy busy lol. Fundraiser is on my mind- but at least I've really only been asked to contribute what I already have collected and sell some tickets. (I was really hoping to do more but this relapse is teachi...

Catching up

I have so many pictures and thoughts that I've been wanting to up load but all my spare time is being dedicated to trying to get CCSVI treatment and finding for the treatment that's really where my energy has been recently. I also have had a major relapse thought I think it may finally be easing up a bit Thank GOD!! It was such an awful reminder of what MS really looks like- I was not a huge fan and I will admit there were some days I really wasn't sure what I was going to do with poor Aidan. He was watching more TV then I care to share about and it was breaking my heart not being able to take him outside.I couldn't walk as the last time I went for a walk I got stranded (even with the stroller for support) and I really wasn't alert enough to drive. Aidan was a very good sport with me not being as involved in play or being as hands on but there was most assuredly a lot of fall out. I'm putting a lot of hope on this treatment working otherwise I think we are goi...