MS Mom

2 days post surgery and I'm starting to feel better. I'm home and that feels excellent. Sadly, even though I cleaned what I could before I left, the house was no where near clean enough for me when I got back. Ugh so I started cleaning immediately (yeah that's the kind of person I am sorry lol). But the good news is that cleaning didn't burn me out the way it did before I left!! yahoo!! Yep I just said yahoo about cleaning- deal with it lol. I didn't do nearly our whole apartment or anything even close (I'm aware I'm still recovering from surgery lol) but I did get my kitchen look good and almost as detailed a clean as I would like. I just need to pull out my steamer to really get the little stuff but it's going to be a process for sure. One room a day should get me to where I want to be soon enough. As you can likely tell I'm also in significantly better spirits than I have been in recent weeks! So nice to feel more like myself for a change. It...

So another day. Still anticipating CCSVI but my optimism has been tempered by seeing more and more reports of people who have to go for further treatments when their veins close up. Not that I didn't know that was a option just didn't know the percentage was so high. I'm worn out. My symptoms are really bad- In fact the worst they have been in 6 years. I'm likely going to get a walker before the week is out and half my face is now effected. If I get courageous I will post a picture but I'm not sure that will happen. I've been thinking I need to do a video and document how I am when sick to show my neurologist what my MS really looks like! I am rarely sick like this when I have an appointment with a neruo so they always tell me how 'mild' my MS is and how grateful I should be that it's not worse. Pardon me but Fuck you for telling me to feel grateful for not being worse! Do something to help me instead! Start some testing in Canada. Let the vein speci...

I have so many pictures and thoughts that I've been wanting to up load but all my spare time is being dedicated to trying to get CCSVI treatment and finding for the treatment that's really where my energy has been recently. I also have had a major relapse thought I think it may finally be easing up a bit Thank GOD!! It was such an awful reminder of what MS really looks like- I was not a huge fan and I will admit there were some days I really wasn't sure what I was going to do with poor Aidan. He was watching more TV then I care to share about and it was breaking my heart not being able to take him outside.I couldn't walk as the last time I went for a walk I got stranded (even with the stroller for support) and I really wasn't alert enough to drive. Aidan was a very good sport with me not being as involved in play or being as hands on but there was most assuredly a lot of fall out. I'm putting a lot of hope on this treatment working otherwise I think we are goi...