MS Mom

OMG people actually come here and read this!! Lol I'm trying not to let that have an impact on my unstructured rambling and cathartic release. I saw the neurologist today. It's so amazing to have trust in my doctor! I can't even explain how huge that is. I had some bad experiences in my first few years. This Dr has now seen me both healthy and sick. That's huge in this situation. She's prescribed me steroids to help encourage healing. So I'm going to take a couple days off from work to let the steroids do their job. Her and I also discussed trying another long term disease modifying drug. So I've asked her to start the process and if pharamacare agrees to cover it then that will be my next step. She's also going to say me up as a patient at the ubc ms clinic which means more resources when I have a flare up like this. So all positive things. If course I managed to screw up my parking and got a parking ticket but other than that all positive &#12852...

2 days post surgery and I'm starting to feel better. I'm home and that feels excellent. Sadly, even though I cleaned what I could before I left, the house was no where near clean enough for me when I got back. Ugh so I started cleaning immediately (yeah that's the kind of person I am sorry lol). But the good news is that cleaning didn't burn me out the way it did before I left!! yahoo!! Yep I just said yahoo about cleaning- deal with it lol. I didn't do nearly our whole apartment or anything even close (I'm aware I'm still recovering from surgery lol) but I did get my kitchen look good and almost as detailed a clean as I would like. I just need to pull out my steamer to really get the little stuff but it's going to be a process for sure. One room a day should get me to where I want to be soon enough. As you can likely tell I'm also in significantly better spirits than I have been in recent weeks! So nice to feel more like myself for a change. It...

So another day full of gratitude. Got some stuff done thanks to my amazing mom. We have a minivan rented- which will make things easier as far as traveling. Used many of my remaining airmiles but it's worth it I think. Now to get packed and sorted. Aidan's new doll friend arrived today!! LOVE him!!! So cute all I want to do is run out and buy some fabric to start making them matching clothes! Ahhh! Hope this isn't going to end badly lol. I'm feeling creative again so that's good. It hard though having my brain but not my body. Body update I'm feeling a bit better after napping much of the morning. I think the steroids have helped! Yay. Wishing I could take my regular supplements as my gut says they would help heal me up a bit faster. I'm also not able to take Advil and I'm missing that from my healing also. So interested to see how we all fair on our road trip. Small spaces with the little man may or may not go well. Hoping we can plan to get him...