I'm putting a lot of hope on this treatment working otherwise I think we are going to have to re-evaluate a lot of our plans for the future. I had a lot of "what the hell was I thinking becoming a parent?" moments- then they fizzled out with a smile or a laugh from Aidan. So much joy and pain being a parent with a disabling disease. SO that's some of the scoop more to follow when I'm more alert and a bit more with it.