A thoughtful place for me to come and share my struggles and accomplishments as a mom with multiple sclerosis. I am an optician and a weaver who loves music, dance and laughter! I have a bright and intense 6.5 year old son and an active and outgoing 3.5 year old so I am often trying to find a way to live the life I dream of, within my physical limitations.
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This is what it's all about!!
Pure joy radiated from his face as he purposely chose colours and placements for this work of art...his face.
It was beautiful to watch him completely enthralled in this moment.
I'm not sure you'll see it but look closely and you will see my sons soul here
I bought these face markers at a local toy store called BC playthings. They are the safest kind I have been able to find which helped put my mind at ease as I do worry about what is absorbed into his system via the bodies largest organ- his skin.
I need to credit a group of ladies called play at home mom for inspiring this activity their blog is full of fun and creative activities to do with kids of all ages.http://playathomemom3.blogspot.com/
Aidan has been using my makeup brushes for sometime now applying his own make up as I get ready for work so I knew he was totally ready for this. He also decorated my face. He actually gave me a VERY distinctive blue beard (both my mom and I knew exactly what is was) and I'm kicking myself for not taking a picture of that piece of art before washing it off. I know we will be doing this again soon so I will make sure I take pictures of it next time!!
Yep you heard me. I'm back and fighting. I'm in Seattle and ready for bed but first an update. I'm going in first thing in the morning for surgery. No calls with delays or anything so I'm hoping that means the green light is lit. I check in a 8am. I'm feeling nervous but lucky. We made it here with relative ease (though the nexus lane was looking mighty enticing while we waited 45min). I found a really sweet little Buddah charm that reminds me of my dad (who died a longish time ago) which left me with some warm fuzzy feelings. I spent a few hours hanging out with my mom at the mall and that was awesome! She is a super rad lady and I'm a lucky daughter. Now to snuggle with the man of my dreams. It's all good!
Tomorrow will bring whatever it brings and I will deal with it one moment at a time. Deep breaths. Goodnight interweb I'll update you when I'm back from surgery.
So I emailed my neurologist about all my new symptoms and the fact that I'm still struggling. First can we please take a moment to celebrate that she emails!! So freaking helpful! Anyways, I told her my symptoms and she thinks I'm having another relapse! Ugg she also said if it's just numbness than we won't try more steroids. It's more than numbness and I'm struggling (this is not something I say except when I'm really really struggling). Anyways, I tried to make that clearer on my reply email but she's going to try to see me at the UBC clinic on Monday. Fingers crossed that I can get an appointment and get some help. Now to obsessively think about why the hell I could be. having 2 relapses so close together and what the fuck in going to do if this is the beginning of my decline already! I've been counting on being healthyish until my late 40's at least so this could seriously throw a wrench into those plans! This is one of the hardest parts of …
Perhaps an introduction? I've often thought of blogging but the shy away from the idea thinking it will be to hard, time consuming or some other lame excuse. Reality? I'm scared... I mean what if you don't like me? What if no one cares about what I have to say? So I've thrown caution to the wind and I'm going to give blogging a try! lol.
I read a blog in which the author explained that part of the reason she blogged was to document things for her daughter- I love this idea! If I can have a written record of some of my adventures and lessons in parenting that I can share with my son when he's old enough that would be fantastic.
It's funny when we started trying for a child I had so many ideas and I really considered myself to be 'prepared' for a child. In many ways we were but there were so many things I didn't even know I needed to prepare for!!! In November 2009 my son was born and my world changed forever in so many ways.