A thoughtful place for me to come and share my struggles and accomplishments as a mom with multiple sclerosis. I am an optician and a weaver who loves music, dance and laughter! I have a bright and intense 6.5 year old son and an active and outgoing 3.5 year old so I am often trying to find a way to live the life I dream of, within my physical limitations.
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My face on this MS relapse
So my dear friend took Aidan out this am so I put some makeup on and thought I'd document my new err "look" so here it is.
Yep you heard me. I'm back and fighting. I'm in Seattle and ready for bed but first an update. I'm going in first thing in the morning for surgery. No calls with delays or anything so I'm hoping that means the green light is lit. I check in a 8am. I'm feeling nervous but lucky. We made it here with relative ease (though the nexus lane was looking mighty enticing while we waited 45min). I found a really sweet little Buddah charm that reminds me of my dad (who died a longish time ago) which left me with some warm fuzzy feelings. I spent a few hours hanging out with my mom at the mall and that was awesome! She is a super rad lady and I'm a lucky daughter. Now to snuggle with the man of my dreams. It's all good!
Tomorrow will bring whatever it brings and I will deal with it one moment at a time. Deep breaths. Goodnight interweb I'll update you when I'm back from surgery.
Perhaps an introduction? I've often thought of blogging but the shy away from the idea thinking it will be to hard, time consuming or some other lame excuse. Reality? I'm scared... I mean what if you don't like me? What if no one cares about what I have to say? So I've thrown caution to the wind and I'm going to give blogging a try! lol.
I read a blog in which the author explained that part of the reason she blogged was to document things for her daughter- I love this idea! If I can have a written record of some of my adventures and lessons in parenting that I can share with my son when he's old enough that would be fantastic.
It's funny when we started trying for a child I had so many ideas and I really considered myself to be 'prepared' for a child. In many ways we were but there were so many things I didn't even know I needed to prepare for!!! In November 2009 my son was born and my world changed forever in so many ways.
It feels like such a long year! I still don't feel like myself. I'm feeling run down and haggard. I wish our situation was one where I could stay home and care for myself better. My eldest is struggling and it's an added burden that is maxing me out. I need to get back to taking care of myself physically but I don't know how I can possibly fit it into my schedual at present. I'm working hard to increase the type and quality of food made at home which is huge since I haven't been doing much since I started feeling MS-y. I keep hoping that I will just snap out of it but that doesn't seem to be happening. I'm not sure what my next steps are but I'm going to keep putting one foot in front of the other until I make it somewhere. Today I got out of bed and had a shower, go my kids fed, dressed and off to school. I've worked a full day of work and will soon be going home. Once home I will do a bunch more stuff like feed myself and get ready for tomorro…